Impatiently Waiting for our Miracle(s)

“Not yet”… that’s what we heard again this week. We learned yesterday that Reid did not get the exception points that we applied for on the liver transplant list. One more set-back. I really felt like we were on a forward track, and that he would get the points. I mean, the doctor pretty much guaranteed us it would happen. So we’re disappointed. We had all of our plans set, as much as possible, but of course we go back to Plan B once again. Honestly, I’m not totally devastated. At least not today. I’m disappointed. And aggravated. But I think I’ve become a little immune to set-backs at this point. I think if this would have happened 3 years ago, I would have had a total meltdown. But not now. I guess I can be thankful for the fact that the last couple of years have made me tougher, and I am more able to roll with the punches. So where does this put us? Honestly, we’re not sure. The transplant coordinator has said that they are going to try to reapply, but unless Reid’s condition ...

Last week was a hard week. I posted on Tuesday that I was going to be excited, and look forward to all the good things coming. Then the next day, the reality set in and it took a couple of days to get my head unstuck again. I became so overwhelmed. During that time, my mom asked again to start a fundraiser for us, and I knew it was in progress. But it was a super hard reality. The situation we’re in has been quite overwhelming at times, but now we were coming to the realization that we may not be able to financially make it all happen. Reid and I both have good jobs, and we have lived a pretty good lifestyle. I started feeling guilty for going on trips and making big purchases for our house… if I had known and we had saved that money instead, maybe we wouldn’t have my mom asking for money on our behalf. It was a crappy feeling. To top that off, I sometimes feel like our situation isn’t that “big of a deal”… it sounds ridiculous, because I know it is a big deal. But someone always has ...

If you know me, or have been following along, you know I’m a planner. I also like to have control. Over the last couple of years, there have been many things out of my control and plans have gone totally awry. Lately we’ve been able to make some plans, and some back-up plans. Last week we met with the transplant team in Indy. What a great experience that was. As I’ve mentioned, we had a good indication that Reid would be able to get a liver much quicker in Indy than he would here in Houston. The team there gave us a lot of hope, and confirmed that the process would be quicker. Reid’s MELD score is still low, but they are going to apply for exception points. The team in Houston said the same thing, but in Indy they seemed confident that he would be awarded the extra points. So we’ve got two scenarios… Reid is awarded the exception points, and would have a MELD score of 22 or 28. This would automatically put him a position on the list where he could get a liver very soon after. ...