I am a terribly impatient person. I know this about myself, but it doesn’t make the wait any easier. Lately, I feel like that’s all we do is wait. We wait on insurance, we wait on the doctors, we wait for another positive pregnancy test, we wait to do IVF. Sometimes I think God thinks he’s quite funny – making one of the most impatient people on this earth wait so much. I know it’s a lesson. I know it’s supposed to teach me to be more patient. But that doesn’t mean I have to like it! So where are we? Well, Reid is officially listed on the liver transplant list. Thank God. Big step done. He was listed on June 8 th with a MELD score of 11. Which is low. He has not been classified as “low MELD in need” yet, which we really hoped for. We need to set up a meeting with the transplant coordinator to figure out if there’s anything else we can do to get him listed as such. We did get a packet of information with requirements in order to maintain his status on the transplant li...
Sharing our struggles with infertility, pregnancy loss, Primary Sclerosing Cholangitis, and the wait for a liver transplant.